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“Connecting with others online who share similar experiences has been incredibly beneficial for me,” states Lyndsey Wilson, a testing coordinator at the University of North Texas Health Science Center residing in Fort Worth. She reflects on the emotional support that comes from witnessing those who have maintained long-term remission. “Seeing that allowed me to accept my circumstances, letting me know that it’s okay to adjust to this new reality,” she remarks.
Similarly, Taylor Pittman, an IT contractor based in Atlanta, shares her thoughts: “While consulting with medical professionals and relying on family is valuable, connecting with peers facing similar challenges has been the most significant source of support for me.” She expresses a transformative shift in her mental health after forging connections with just a few individuals navigating the same journey.
‘I shared what I was going through.’
Social media has emerged as a vital tool for those looking to connect with others outside traditional support groups. For instance, after Stockett began discussing her experience with ulcerative colitis (UC) on social platforms, several individuals, including acquaintances, reached out to share their own diagnoses. Pittman also eventually decided to share her journey on social media after keeping her condition private for several years. “I posted on Instagram, saying, ‘This is what I have. Is anyone else experiencing this?’” She was taken aback by the outpouring of responses from others who resonated with her experience. “Now, I regularly text three or four women who also have an ileostomy bag like mine,” she shares. This vulnerability, she notes, has revealed her own courage in dealing with the condition.
Even for those who are hesitant to discuss their challenges publicly, engaging in private conversations can still be advantageous. “I understand that some prefer not to talk about their situation,” says Wilson. “However, when you’re ready, reaching out to others—being candid about your experiences—can be mutually beneficial. It allows others to understand what you’re facing.”
‘I built a strong support system.’
All the women featured in this article emphasized the importance of having a robust support network among friends and family. “Many of my friends were with me before my diagnosis, so they witnessed my journey firsthand,” Wilson explains. “Even if they can’t fully grasp every aspect of my situation, their understanding and willingness to listen makes a significant difference. Being open with those you trust about your experiences can indeed be very helpful.”
Source
www.self.com